“In a modern healthcare system it is not acceptable that children who could be healthy are being left to suffer with life limiting conditions when there is safe and effective treatment available. All because of red tape. I know from my journey the difference these medications make tochildren and their families. But right now bureaucracy and a tickbox approach is turning caring
parents into criminals. That’s why MedCan want an
immediate shake up of the system, so that kids are no longer denied the medicine that could save them.With the launch of this manifesto we are calling for an urgent 12 month plan from government, medical bodies and suppliers to get these medications to the families that need them with no more delays. Because no child should be left to suffer.”
