Trustees Hannah Deacon and Alice Salisbury recently shared their insights with BBC Breakfast News, shedding light on the pressing issue of limited access to advanced cannabis medications within the NHS. Their discussion underscored the adverse effects of existing policies, which are taking a toll on the families receiving crucial support from the Medcan Family Foundation.https://youtu.be/upjmqw0R9wo?si=Nz6Uay3EDFSLcqa7Both...
The endocannabinoid system (ECS) is a complex signaling system that plays a crucial role in regulating various physiological processes in the body. It was discovered in the 1990's while researching the effects of THC on the human body, but it was later found that the body produces its own cannabinoids and has a system to...
Gino has had seizures since 2 weeks old and we have never regained control. He has tried numerous pharmaceutical drugs over the past 4 years, the ketogenic diet, 2 rounds of steroid injections and has a vns fitted...
Eddie is doing well, and since he has been on his private prescription we have not needed to call an ambulance, or administer rescue medication. Eddie’s seizures have evolved and we are awaiting a confirmation of a Lennox Gestaut diagnosis, so epilepsy will always be a huge part of his and our lives. But medicinal...
When Alfie was born, he spent the first four months of his life in hospital, lived on and off life support and experienced his first seizure at just eight months old. Alfie lives with a very rare form of epilepsy and, prior to medical cannabis treatment, experienced more than 500 seizures a month. Now, Alfie, aged...
Charlie Hughes turned three in July and was diagnosed with West Syndrome – a rare epileptic condition which causes him to suffer up to 100 spasms per day – when he was just 10 weeks old. Since May 2019, his parents, Matt and Alison, have been buying cannabis-based medicinal products (CBMPs) through a private UK prescription, which...
At 2 1/2 years old we woke to the sound of Bailey choking we phoned an ambulance, they diagnosed a Febrile Convulsion. These Convulsions continued to happen we were then told he had Epilepsy. From here on Baileys Seizures become more frequent and violent he was having Tonic Clonic Seizures, then they progressed into Drops...
Teagan is 13 years old and has a chromosome disorder called Idic15 This is where her epilepsy comes from. Teagan can seizure up to 300 times per day. In 2018 she spent 2.5 months in intensive care fighting for her life. We didn't think she was going to come home. Then, we managed to get medical...